Tuesday, March 11, 2014

Day 33

Day 33

Day 33: 1110 grams or 2 lbs 7 oz. No weight gain today. He is still doing great with eating. He is up to 17 cc, and a full feeding is 20 cc. He is already off the TPN and just getting D10 (sugar water) for the calories. Tomorrow he will be at full feeding and will not get the D10 anymore. At this point they will add calories to the breast milk to make sure he's getting enough. We are enjoying our twice a day snuggle time with Jackson and we can tell he loves it too. We bought him some books and take turns reading to him while holding him. Soooo much better than the little bit of contact we got during diaper changes. Although we still look forward to those every 3 hours too. The steroids are giving Jackson serious roid rage. He gets ahold of that tube and his knuckles turn white, he's gripping it so hard. He wants it out, and he wants it out now! They've given him Ativan to help him calm down until he's done with the steroids. The steroids have also given him a very round face, they call it moon face, but that will go away once he stops them. He will have his last dose of steroids tonight. Tomorrow they will try the tube out again. We are praying he is able to stay off the ventilator this time.  FOJSP!!! 

Sleeping soundly after a roid rage freak out

Poor little 'moon face' right before a full blown tantrum

No comments:

Post a Comment