Crazy how much has changed in a week. Jackson is now taking only breast milk, no more TPN, and has gained 5 ounces. He is doing so well with eating, and has stopped spitting up almost completely. He has nothing 'sticking' him any more, no more central lines or IVs. And he is off the ventilator. He has been off for 64 hours as I post this. Previously his longest stretch was 30 hours. The doctors and nurses keep warning us not to get our hopes up do that we aren't crushed if he has to go back on the ventilator. We are tring but we are so proud of him. He is so tough and fighting so hard to breathe on his own. And lastly we are getting to hold him so much more. In the first month we got to hold him a total of 3 times. Now we get to hold him twice a day. Our little guy has come so far in 5 weeks.
Day 36
Jax day 36. 1100 grams or 2 lbs 7oz. Still off of the vent. Stridor is still minimal but present. Blood gas numbers are good. Dr Simmons is a little concerned about his apnea bradycardia so he is going to give him a little more caffeine and increase the oxygen pressure a little. We are using a ram air cannula so he is hooked to a ventilator but it is not hooked up to an intubation tube. Cannula is just a little bigger and the hoses are stiffer than a normal cannula. His weight has not gone up much and charted he is below the 3rd percentile for his gestation age so they are giving him additional supplements in his milk to help him start to gain weight. They held off until today because he may have an aversion to the supplements and he needed all his energy focused on breathing. He is doing very well overall. FOJSP!
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