Monday, March 14, 2016

Eating...it's kind of a big deal

This will be a quick update because Jackson is having surgery this afternoon (or as we speak because I was slower to post than I intended) to put in a more permanent feeding tube into his stomach. 

Which on the plus side means we're getting this adorable face back!

But on the down side it should make the game "where's your belly button" more interesting with an extra button on his belly. 

Eating has been a big challenge for Jackson for a long time. After all the medical things he has been through he developed an oral aversion. He wouldn't chew on his fingers, toys, and gave a big 'no thank you' to any solid food. Our saving grace was he was still ok with his bottle. That was until this January when all these issues started and now he's refusing the bottle too. So he will be getting a g-tube while we work on his feeding therapy. 

I thought this was an amazing article that really explained oral aversion and the options for therapy if you're into that sort of thing: http://mobile.nytimes.com/2016/02/07/magazine/when-your-baby-wont-eat.html?mwrsm=Email&_r=0&referer=

On the flip side there is this girl who loooves to eat and made for a fantastic cafeteria breakfast date this morning even though she stole all my scrambled eggs 

I'm being light about this surgery because 1. Optimism and humor is how I deal and 2. It is pretty common surgery and there are usually no complications, but we know how that goes...

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