Day 9

Day 9

Happy Valentines Day!

After finally getting his arm back from having it wrapped up for the arterial line. Such a little man lounging here. 

Jax day 9. 1lb 14oz. We have a pooper again! It had been four days since the last one so this is a good sign. Blood gasses came in pretty good. Respiratory side is good still but he is a little off on the metabolic side so they are countering that with bicarbonate and then will adjust his TPN regimen to normalize his ph. They removed the arterial line from his right arm and were able to get one into his belly via the small amount of his cord remnants. This will serve as a great central line to pull blood samples going forward. His hematocrit is 28 so they are giving him blood today 13 ccs so about 2.6 teaspoons over a three hour period. They want him over 35 hematocrit. He now has a new IV in his right leg to give him blood. They will leave it in at least a day in case they need to give any additional blood. This will be one of many for our little boy. At this age his blood cells breakdown more rapidly than he is able to produce them and they have been pulling a lot of samples that largely contributes to the anemia. He still has a murmur but it is not as loud. This is a double edged sword because a murmur is detected by the sound of the turbulence and if the duct opened more it would be more volume less velocity and in turn less turbulence. This is why they perform an Echo. He had his Echo on his heart earlier today. It looks like the PDA is still open but may be less open than before. The results will come back later and that will determine whether we run another Indomethacin or Neoprofen treatment or not. Very likely they will run one more treatment. Many times they will leave an open PDA if it is minimal and not causing problems. If it does not get better or gets worse there is a possibility that he will be transferred to primary children's hospital to have it surgically closed. They have been consulting with primary children's regarding his case. That is an example of an extreme case. This will be a decision for next week and we are focusing on day to day... And today has been a good day. He has been happy, he got his right arm back, he's been refueled, and full of piss and vinegar. He is a tough little boy and he has a feisty mom and dad that are here for him. FOJSP!!! (Fight On Jackson Shaun Parker)